Bladder Cancer WebCafe
This online resource for patients with bladder cancer is very comprehensive, with information on clinical trials, breaking research, treatment options, symptoms, and more. It is very much a patient-driven site, where members host their own blogs and create downloadable “survival guides” for new patients. The site also allows members to subscribe to e=mail discussions or submit questions on terminology and treatments. The WebCafe also provides links that direct patients to other sources of information and financial assistance.
National Brain Tumor Society
The National Brain tumor Society (NBTS) serves as a resource center for patient, families, caregivers, researchers, and medical professionals. The Website is available in English and Spanish and features information on several types of brain tumors and their treatments. NBTS offers a variety of patients support services at 800.934.2873, including advice on how to get financial assistance. The fundraising efforts sponsored by NBTS help support research that is linked directly to patient care and enhances the quality of life for individuals with brain tumors.
Susan E. Lusty Glioblastoma Foundation
A main focus of the Susan E. Lusty Glioblastoma Foundation (SELF) is to help patients undergoing treatment at Memorial Sloan-Kettering Cancer Center in New York City with nonmedical expenses. SELF helps arrange accommodations close to the treatment facility for patients, family members, or friends and provides transportation. The Website hosts a variety of resources, including a downloadable brochure offering support and information to patients with gioblastoma. SELF provides several links to resources available online at various institutes famed for cancer research and treatment. In addition, patients can communicate with other patients via the SELF message boards.
Breast Cancer Action
Breast Cancer Action (BCA) is a grassroots organization comprised of breast cancer survivors and their supporters. BCA educates the public on breast cancer issues by providing downloadable flyers and fact sheets on breast cancer issues. BCA also advocates for policy changes that are likely to help reduce the incidence of breast cancer and reduce disparities in breast cancer outcomes.
Breast Cancer Network of Strength
Previously known as the Y-ME national Breast Cancer Organization, Breast Cancer Network of Strength provides information on all aspects of cancer care, including diagnostic techniques, risks, and treatments. The site also hosts online message boards, where patients and their families can find support. The organization operates a wig and breast prosthesis bank and staffs a 24- hour breast cancer hotline, which can be reached at 800.222-2141.
Living Beyond Breast Cancer
Living Beyond Breast Cancer (LBBC) provides education and advocacy services to patients and families affected by breast cancer. LBBC offers a toll free helpline for breast cancer survivors and distributes a free quarterly newsletter. The site also provides information on breast cancer specific to the unique concerns of African American and Latina women. LBBC seeks to extend the lifespan of patients with breast cancer and improve their quality of life.
National Breast Cancer Coalition
The National Breast Cancer Coalition (NBCC) focuses on three main goals; finding a cure by increasing appropriations for high quality, peer-reviewed research; increasing access to high-quality treatment and care, as well as breast cancer clinical trials; and NBBC host fundraising and advocacy events and trains people to serve as advocates on important breast cancer issues.
Susan G. Komen for the cure
This well known US- based organization funds research grants and supports breast cancer education, screening, and treatment projects throughout the world. At the Susan G. Komen Website, visitors can access information about all aspects of breast health. They can also download educational materials and get information about community support groups.
Susan Love, MD Breast Cancer Foundation
This site concentrates on pursuing research programs and promotes breast disease education.
Gynecologic Cancer Foundation: National HPV & Cervical Cancer Campaign
The gynecological Cancer Foundation has launched a nationwide campaign designed to educate women and physicians on the causes of cervical cancer and the best way to prevent or detect the disease. There is a wealth of patient resources, including facts on the human papillomavirus (HPV) and vaccination. The site includes a physician search engine and an “Ask a Doc” section with common questions and answers.
National Cervical Cancer Coalition
Through outreach and coordination with other organization, the National Cervical Cancer Coalition (NCCN) educates the public on the need for cervical cancer prevention and seeks to increase awareness and funding through its advocacy efforts. NCCN offers a hotline for women and family memebers battiling issues related to cervical cancer and HPV. NCCN also sponsors CME conference credits for physicians.
Colon Cancer Alliance
Colon Cancer Alliance (CCA) was founded in 1999 to provide support for those with this disease. The organization has several local chapters throughout the Unites States and Canada. CCA works with other advocacy groups to increase effective treatments or a cure for colorectal cancers. CCA provides patient support and a variety of disease management services. The Website includes downloadable fact sheets on diagnosis and treatment.
Esophageal Cancer Awareness Association
The Esophageal Cancer Awareness Association (ECAA) is relatively new organization that seeks to provided information and support for individuals with esophageal cancer and their families and caregivers. ECAA raises money for research into the causes, treatments, and outcomes of esophageal cancer. The Website provides easy to read information on esophageal cancer, such as descriptions of the disease, how it is diagnosed, staging, treatment options, and risk factors. ECAA also publishes a quarterly newsletter outlining its advocacy efforts and new research.
GIST Support International
GIST Support International (GSI) provides education and support for individuals and their families who are affected by a diagnosis of gastrointestinal stromal tumor (GIST). The Website has information on clinical trials, a section that provides the latest research news and advice for patients who have received a recent diagnosis. Visitors can access English and Spanish downloadable brochures in the learning center or under educational materials. There is an extensive section on treatment options, and a list of common questions and answers about GIST.
American Kidney Fund
The American Kidney Fund (AKF) helps individuals with chronic kidney disease. The organization provides financial assistance to fund dialysis treatment for patients on dialysis retain health insurance coverage. AKF raises money to finance efforts to increase awareness of kidney disease and support research initiatives. The Website includes, Podcasts, general information on kidney diseases, and advice on protection kidney health. The helpline assists English and Spanish speaking patients.
Kidney Cancer Association
The stated mission of the Kidney Cancer Association (KCA) is to fund, promote, and collaborate with other institutions on research projects; educate physicians and patients about kidney cancer and its treatment; and advocate at federal and state levels on behalf of patient interests. The Website features newsletters and Podcasts, as well as an abundance of information on the disease. Visitors can ask a question online or contact a nurse through the KCA- sponsored nurse hotline at (503) 215-7921
The Leukemia and Lymphoma Society
They are the world’s largest voluntary health organization dedicated to funding blood cancer research, education and patient services.
The Max Foundation
The Max Foundation (TMF), named for a teenager who died from chronic myelogenous leukemia, seeks to help patients with leukemia worldwide. TMF provides patients and their families and caregivers with support. The organization offers free services and assistance in more that 30 languages. TMF helps secure drug donations or access to patient assistance programs and clinical trials. TMF also helps patients navigate the healthcare system to get reimbursement for their treatments.
American Liver Foundation
The American Liver Foundation (ALF) was established in 1976 by scientists and healthcare professionals concerned about the lack of awareness of liver disease. ALF funds medical research and educational opportunities for medical professionals. The organization also advocates on behalf of patients with liver disease and provides information for patients and their families. Public awareness campaigns focus on prompting liver wellness and preventing disease. Alf provides information on several liver diseases, including cancer and hepatitis B, which has been linked to hepatocellular carcinoma.
America Lung Association
This national association is dedicated to saving lives by improving lung health and preventing lung disease through research, education, and advocacy. The American Lung Association (ALA) offers multiple programs on tobacco cessation and improving environmental health. ALA also provides research grants and sponsors the education of medical professionals who plan to specialize in lung cancer research. Ala works to encourage the creation and enforcement of regulations and laws relating to lung health at national, state, and local levels.
Lung Cancer Alliance
Eradicating lung cancer is what the nonprofit Lung Cancer Alliance (LCA) is all about. This national organization is dedicated solely to providing patient support and advocacy for people living with or at risk for the disease. Recognizing that clinical trial participation is the best way to make progress against lung cancer, LCA sponsors a clinical trial matching service for patients. LCA also seeks to educate the public on lung cancer and help reverse decades of stigma and neglect by empowering patients, elevating awareness, and changing health policy.
Lung Cancer Circle of Hope
Lung Cancer Circle of Hope (LCCH) is committed to educating the public and members of the medical community about lung cancer. The website provides a vast amount of information on lung cancer and its historical subtypes. It also describes symptoms, diagnosis, and treatment, and it encourages patients to take part in clinical trials. The organization hopes to help reduce the incidence and mortality rates of lung cancer and see a cure discovered.
National Lung Cancer Partnership
By increasing awareness and advocating for funding of research, the National Lung Cancer Partnership (NLCP) seeks to decrease lung cancer deaths. The Website provides information to educate and empower patients so they can be active participants in their treatment and care. NLCP provides grants for survivors, patient advocates, and trainees to attend major scientific and medical conventions. It also offers telephone workshops with leading oncology experts.
The Myelodysplastic Syndrome Foundation
The myelodysplastic Syndromes Foundation (MSF) is an international organization established by physicians and researches to foster the exchange of information on myelodysplastic syndromes (MDS). MSF helps refer patients to top-notch treatment centers and provides them with contact information for ongoing clinical trials. MSF has established patient advocacy groups, research funding, and physician education. The Website includes a link to online forums where patients and caregivers can discuss living with MDS.
Internantional Myeloma Foundation
The international myeloma Foundation (IMF) compiles up-to-date information on the latest in myeloma research. The organization offers several publications and Webcasts designed to educate patients, families, caregivers, and the medical and scientific communities on multiple myeloma. IMF also guides patients on obtaining legal help or getting assistance for reimbursement issue. Patients Can also information on clinical trials and support services at the website.
Head & Neck
Oral Cancer Foundation
This national public service nonprofit entity works to reduce the suffering of people with oral cancer and save lives though prevention, education, research, advocacy, and support activities. The Oral Cancer Foundation (OCF) Website features a patient/ survivor discussion forum, open to the public, where those currently fighting oral cancer can gain insight and inspiration from others who have been there. It also provides hundreds of pages of information on oral cancer and discusses facial reconstruction.
National Ovarian Coalition
This organization provides the medical community and the general population with a comprehensive resource for ovarian cancer information. The National Ovarian Cancer Coalition works to raise awareness about the incidence, prevalence, and clinical presentations of ovarian cancer. The Website provides information on participatingin clinical trails and operates a helpline at 888-OVARIAN.
Prostate Cancer Foundation
The Prostate Cancer Foundation (PCF) is an international organization that helps fund clinical research in the quest to find a cure for prostate cancer and improve treatment. PCF produces guides for patients on how to discuss prostate cancer, what to expect from treatment, and how to live with prostate cancer. The organization also distributes a newsletter on advances in prostate cancer research. The Website has a wealth of information on the disease and discusses the organization’s research efforts and grant offerings.
Prostate Cancer Institute
The Prostate Cancer Institute (PCI) provides an abundance of helpful information on prostate cancer diagnosis and treatment at this Website. PCI says its goal is to “provide information for prostate cancer patients and their families.” The site has a section of noninvasive treatments for early stage prostate cancer and a link to search for a physician. In addition, the toll free number connects you with a nurse, available to discuss your concerns or questions.
Prostate Cancer Research Institute
With a mission to empower patients through education, the Prostate Cancer research Institute (PCRI) provides downloadable pamphlets and a quarterly newsletter, called PCRI Insights, for those affected by prostate cancer. The Website has online videos of panel discussions on the latest prostate cancer research and treatments. Visitors can also sign up to receive free DVDs and publications that discuss how to live with prostate cancer. PCRI has launches a new initiative to raise money to fund research. The Website also lists available clinical trials.
The Prostate Net
Prostate Net works to provide information to men at risk for prostate cancer or dealing with a diagnosis of prostate cancer. Through several programs and outreach efforts, Prostate Net also seeks to eliminate disparity in prostate cancer care. The site features information on treatment options, a physician referral service, Podcasts, and a telephone hotline for those who need one-on-one support.
Us Too International
A group of prostate cancer survivors formed Us TOO in 1990, with the mission of helping prostate cancer survivors, their partners, and their families. Us TOO provides educational information on the detection and treatment of this disease and works to improve quality of life for those affected by prostate cancer. Us TOO also advocates on patients behalf to see that they have access to programs, medications, and treatments that offer the best chance of survival. The organization has several national chapters, and the Website sponsors a support forum called Prostate Pointers.
National Cancer Institute RCC Treatment PDQ
The National Cancer Institute (NCI) Website has sections for a variety of malignant diseases. The Renal Cell Cancer (RCC) Treatment PDQ is designed for patients and provides an overview of the development of RCC, how RCC is staged, and treatment options. The site is available in English and Spanish. Visitors can use links to access statistics on RCC, a dictionary of cancer terms, and the NCI drug dictionary. They can also search for free brochures. For questions about cancer, patients can call the toll free number or use LiveHelp online chat. The Website also includes a PDQ for medical professionals who treat patients with RCC.
The Urology Channel, sponsored by Healthcommunities.com, provides information on a wide variety of urological conditions, including kidney, bladder, and prostate concerns. The online community was established by board-certified physicians who continue to monitor activity at the website. The Website includes forums separated by disease state. Patients are also invited to submit their personal stories for inclusion on the website. In addition, visitors to the site can search for information on various diagnostic tests and treatments, or they can use the MDLocator to find a nearby physician. The “Cancer Profilers” interactive support tools help patients make informed decisions about treatment by providing them with evidence-based data from the medical literature.
American Melanoma Foundation
The American Melanoma Foundation (AMF) was founded by melanoma patients and their relatives with the mission of supporting research for new treatment approaches. The Website offers facts about melanoma; information on prevention, diagnosis, and treatment; and a clinical trials resource center. AMF also has several patient stories hosted at the website, and visitors are welcome to submit their own stories about living with melanoma. The site sponsors activities and events designed to raise awareness of melanoma and raise funds for melanoma research.
Skin Cancer Net
Sponsored by the American Academy of Dermatology, Skin Cancer Net (SCN) is an online resource for people with skin cancer. In addition to prevention, the site discusses diagnosis and treatment. SCN also has information for people with advanced disease, discussing chemotherapy, immunotherapy, and clinical trials. One section is dedicated to information on melanoma, the deadliest form of skin cancer. Visitors can sign up for SCN’s monthly newsletter and check their area’s daily UV index.
Skin Cancer Foundation
For 30 years, the Skin Cancer Foundation (SCF) has worked to raise awareness of skin cancer and the need for prevention. SCF advocates for funding to increase research and encourages others to get involved in these efforts. The Website provides facts on multiple types of skin cancer. It also addresses guidelines for prevention, advising visitors on how to minimize their risks of getting skin cancer. The organization publishes the Melanoma Letter, which includes articles from experts on recent developments in skin cancer research.
American Society of Hematology
This site offers information for understanding, diagnosis, treatment and preventions of disorders affecting the blood, bone marrow, and the immunologic, hemostatic and vascular systems, by promoting research, clinical care, education, training and advocacy in hematology.
The American Society of Clinical Oncology (ASCO)
ASCO is the world's leading organization representing physicians of all oncology subspecialties who care for people with cancer.
The American Cancer Society
This site offers information on clinical trails and drugs used to treat cancer.
This site is dedicated to providing the most up to date cancer information on the treatment and prevention of cancer for patients and professionals.
Forward Touch is a letter archive and mailing service that allows you to communicate with your loved ones whenever you wish, even when you are not able to.
The National Cancer Institute
This is a US government agency responsible for conducting and supporting research on cancer. This site offers complimentary and Alternative Medicine information on cancer treatment types, open clinical trials and supportive care.
National Comprehensive Cancer Network
This is a not-for-profit alliance of 21 of the world's leading cancer centers. They are dedicated to improving the quality of effectiveness of care provided to patients with cancer.
Partners Against Pain
This site offers patients, caregivers, and institutions, comprehensive resources for pain management.
People Living with Cancer
This is an award-winning patient website from ASCO. It provides accurate, comprehensive, oncologist-approved information to help people make informed health-care decisions.